The Rare Life

The Rare Life

This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney.

Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting.

Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.

Último episodio

201: Roya's Story | A Diagnosis Without a Map, Learning to Advocate + the Journey Back to Herself (16.10.2025)

Episodios anteriores

  • 200: Facing End of Life Choices + The Way Life Changes After Child Loss w/ Stephanie Stanley 09.10.2025
  • 199: Adopting a Medically Complex Child w/ Kristen Henry 02.10.2025
  • 198: Ashley’s Story | A Year in the NICU, Impossible Choices + Complex Joy 25.09.2025
  • 197: When Meaningful Friendship with Other Disability Parents Feels Elusive w/ Madeline Cheney 18.09.2025
  • 196: One & Done | Deciding Not to Have More Children After Disability 11.09.2025
  • 195: Ali’s Story | An Invisible Disability, Living in Survival Mode + Giving Up Her Dream Career 04.09.2025
  • 194: Kicking Off Season 12 | Episode Sneak Peeks + a BIG Announcement 28.08.2025
  • When Therapists Leave | Feelings That Come Up + Knowing When It’s Time to Cut Ties 14.08.2025
  • How To Talk To Kids About Disabilities 08.08.2025
  • Inspired By Disabled Kids? What Feels Ok + What Feels Ick 31.07.2025
  • Mixed Feelings When Your Child’s Health Stabilizes w/ Jessica Loey 24.07.2025
  • Medicaid Cuts | Implications for Families Like Ours + What We Can Do About It 17.07.2025
  • Groundhog Days, Gradual Changes, & Deep Family Ties | Marci’s Catch-Up 10.07.2025
  • Dreams That Stir Up Grief 03.07.2025
  • How Your Monthly Cycling Might Be Impacting Your Caregiving Experience w/ Suzi Boubion 26.06.2025
  • Everything You’ve Ever Wanted to Know About Alyssa 19.06.2025
  • Book Review: “How to Handle More Than You Can Handle” by Amanda Griffith-Atkins 12.06.2025
  • Mindfulness for Medical Parents w/ Chrissy McGuire 05.06.2025
  • 192: Season 11 Finale | Poolside Chats with Texas ECI, Production Chaos, + Summer Mini Eps w/ Alyssa Nutile 22.05.2025
  • 191: Abortion + Parents of Disabled Kids w/ Alyssa Nutile 15.05.2025

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